Patient Care Center

Webinar

Health Equity and Rare Disorders

NORD is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore underlying issues that lead to inequities and encourage participants to evaluate their interactions with members …

Health Equity and Rare Disorders Read More »

Followup Questions on CAEL101: Michael Spector – ASG Webinar 8/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Michael Spector, Executive, Alexion, Astra Zeneca Rare Disease, Boston, MA

Financial Assistance Update: Paula Schmitt – ASG Webinar 5/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Paula Schmitt, Executive Director, Amyloidosis Support Groups

Financial Assistance for AL Patients – ASG Webinar 5/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis patients and caregivers in the Northeast region on September 18, 2021. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis. Paula Schmitt, ASG Executive Director, gives an update on financial assistance for AL patients.

Scroll to Top