There are times when those afflicted with amyloidosis need assistance – a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so extensive that securing a caregiver is required before treatment commences. It is for these situations that we thought we’d share some thoughts about how to build a caregiver …
In some cases, caring for a loved one with hATTR amyloidosis can become a full time job, which can result in many changes to your daily life. Taking quality time to care for yourself is an important part of being a caregiver. If you are burnt out or not taking care of your own health, …
Clinical trials are research studies that involve people. Understanding what they are can help you decide if a clinical trial might be an option for you. Or maybe you have a friend or family member with cancer and are wondering if a clinical trial is right for them. We’ve provided basic information about clinical trials …
Clinical Trials Information for Patients and Caregivers Read More »
If you are already suffering from stress and depression, seek medical attention. Stress and depression are treatable disorders. If you want to prevent burnout, consider turning to the following resources for help with your caregiving: Home Health Services:These agencies provide home health aids and nurses for short-term care, if your loved one is acutely ill. …
Here Are Some Steps You Can Take to Help Prevent Caregiver Burnout:
Caregiver burnout is a state of physical, emotional and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and unconcerned. Burnout can occur when caregivers don’t get the help they need, or if they try to do more than they are able, physically or financially. Many caregivers …
Amyloidosis Support Groups Inc., a nonprofit corporation was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to providing peer group support to patients, caregivers, families and friends of those touched by this life threatening disease. Goals and Objectives:
When a family member has been diagnosed with hATTR amyloidosis, the range of symptoms that come with the disease may require a loved one to become a caregiver. Becoming a caregiver is a significant responsibility and can present challenges that require lifestyle changes for you and your loved one. We’re here to help. This guide …
A Guide to Caring for a Loved one With Hereditary ATTR (hATTR) Amyloidosis Read More »