Webinar

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis patients and caregivers in the Northeast region on September 18, 2021. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Cara Rosenbaum, MD, Hematologist/Oncologist and Assistant Professor of Medicine, Weill Cornell Medical College, New York, […]

Amyloidosis Support Groups webinar from May 21, 2022, covering the latest on light chain (AL) amyloidosis featuring ASG President Muriel Finkel and amyloidosis expert Sascha A. Tuchman, MD, Director, UNC Multiple Myeloma and Amyloidosis Program talks about Daratumumab in Light Chain Amyloidosis (AL).

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Dr. Michael Rosenzweig, Hematologist/Oncologist, Associate Professor, Division of Multiple Myeloma, Department of Hematology & Hematopoietic Cell Transplantation, City of Hope,

Amyloidosis Support Groups webinar on ATTR amyloidosis from July 23, 2022. Led by ASG President Muriel Finkel, featured speaker Michael Maitland, MD, PhD, Sr. Director, Clinical Development, Intellia Therapeutics, talks about CRISPR/CAS9 Gene Editing for Transthyretin (ATTR) Amyloidosis

Jeffrey Cehelsky of Intellia provides an update on Intellia’s CRISPR/Cas9 genome editing treatment for TTR amyloidosis at ASG’s 12/05/2020 ATTR webinar.

The National Organization for Rare Disorders (NORD), along with The ALS Association, Cystic Fibrosis Foundation and Muscular Dystrophy Association, is pleased to host this special webinar with leaders from the US Food and Drug Administration (FDA) and the Centers for Disease Control (CDC) to discuss the COVID-19 vaccines with the rare disease community. FDA recently

COVID-19 is causing significant concerns globally. During this webinar, the speakers discuss the ways patient groups can assist their members and other constituents in reducing the impact of COVID-19, such as how patients with chronic diseases can avoid the illness, what to do if they feel sick, and how patient groups can prepare to field

Presentation by CEO Michael J. Roberts on Corino’s investigational TTR kinetic stabilizer CRX-1008 from the ASG 12/05/2020 ATTR Webinar.

Updates on ATTR clinical trials from Pfizer, Ionis, Intellia, and Corino from ASG’s 12/05/2020 ATTR webinar. Updates from Eidos and Alnylam are not included as both were only authorized for the live webinar and not for post-webinar distribution.

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Muriel Finkel, President, Amyloidosis Support Groups.