Patient Care Center

Webinar

Multiple Myeloma vs AL Amyloidosis Diagnosis – ASG Webinar 10/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis patients and caregivers in the Northeast region on September 18, 2021. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis experts: Cara Rosenbaum, MD, Hematologist/Oncologist and Assistant Professor of Medicine, Weill Cornell Medical College, New York, …

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Michael York Talks About His Personal Battle With Amyloidosis and Stem Cell Research

Michael York, star of films such as Cabaret, Logan’s Run, and Austin Powers, spoke to the California Stem Cell Agency Governing Board about his personal battle with amyloidosis, a rare, often fatal disease caused by the abnormal deposit of proteins called amyloids in various tissues of the body. In addition to amyloidosis, York was also …

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Mayo AL Staging and New York Heart Staging Explanation: Dr. Julie Rosenthal – ASG Webinar 7/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Dr. Julie Rosenthal, Heart Failure & Transplant Cardiologist, Director Cardiac Amyloidosis Program, Assistant Professor of Medicine, Department of Cardiovascular Diseases, …

Mayo AL Staging and New York Heart Staging Explanation: Dr. Julie Rosenthal – ASG Webinar 7/13 Read More »

Mayo AL Staging Followup Explanation With Chart: Dr. Julie Rosenthal – ASG Webinar 10/13

Amyloidosis Support Groups’ webinar for light chain (AL) amyloidosis was hosted on January 15, 2022. Led by ASG President Muriel Finkel, this webinar discusses the current treatments for light chain amyloidosis and features amyloidosis expert: Dr. Julie Rosenthal, Heart Failure & Transplant Cardiologist, Director Cardiac Amyloidosis Program, Assistant Professor of Medicine, Department of Cardiovascular Diseases, …

Mayo AL Staging Followup Explanation With Chart: Dr. Julie Rosenthal – ASG Webinar 10/13 Read More »

Liver Transplant for ATTRm

Mayo Clinic hematologist, Angela Dispenzieri, discusses liver transplant for Transthyretin (TTR) amyloidosis. Symptoms of transthyretin amyloidosis are shortness of breath, changes in bowel habits, reduced exercise stamina, and numbness or tingling. The treatment for transthyretin amyloidosis includes liver transplantation done through a donor program or through a living donor.

Jessica Edwards: Coping With Amyloidosis – ASG Webinar 6/6

The Amyloidosis Support Group webinar recorded on April 17, 2021, focused on the mental health aspects of coping with this life-altering disease. Muriel Finkel, ASG President, led the webinar and Q&A session. The webinar is presented by: Jessica Edwards, Director of External Relations, Strategic Alliances & Development for the National Alliance on Mental Illness (NAMI) …

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