Greg Foster narrates the story of his eventual diagnosis of Cardiac “AL” Amyloidosis: A rare and deadly disease. He is an Olympic silver medalist, 1984 and four times world champion in a 110metre hurdles race. He says amyloidosis knocks him down sometimes mentally, physically and emotionally but believes that his journey of amyloidosis is a …
Gregory Foster AL Amyloidosis “A Fight for Answers” Read More »
The treatment of AL amyloidosis is moving forward with new drugs and aims of treatment. Dr. Ashutosh Wechalekar, University College London, explains the ways in which AL amyloidosis treatment is advancing and how AL amyloidosis patients can accelerate the development of new drugs by taking part in clinical trials.
In celebration of Amyloidosis Awareness Month, we share our FACES of Amyloidosis 2020. Each person in this video is affected by amyloidosis. Each is on their own journey and wants the world to know that this disease isn’t so rare, and as time passes there is more and more hope.
Each person in this video is affected by amyloidosis. Each has their own story to tell the world, which begins, but doesn’t end, here.
Hereditary transthyretin amyloidosis (hATTR) is a devastating, progressive disease. Listen to Dr. Ashutosh Wechalekar discuss the symptoms of hATTR amyloidosis, including neuropathic, gastrointestinal and cardiac symptoms, and the burden this disease has on patients.
This video was created by an anonymous team to help spread awareness of Amyloidosis through patients’ stories. This is mine. They have allowed me to present it in honor of my mom’s 17th anniversary of her passing on May 26, 1997, due to complications and years of sickness with Familial Amyloidosis. It is my hope …
Michael Rosenzweig, MD, Assistant professor in the Department of Hematology and Hematopoietic Cell Transplantation at City of Hope, discusses the standard of care for the treatment of patients with amyloidosis. Autologous stem cell transplant, the current standard of care, is generally well tolerated by patients who are eligible, says Rosenzweig. Clinical trials are underway exploring …
Dr. Rosenzweig Discusses the Standard of Care in Amyloidosis Read More »
Dr. Ashutosh Wechalekar discusses the types of treatment currently used for AL amyloidosis, how they work and some of the more common side-effects. Dr. Ashutosh Wechalekar is a Consultant Hematologist at University College London.