American Society of Nuclear Cardiology (ASNC) is supporting a collaborative approach to awareness, early diagnosis and effective treatments that will save lives and improve quality of life for patients with cardiac amyloidosis.
Presented by Dr. Jeffrey Zonder and sponsored by Alnylam Pharmaceuticals and Prothena.
Amyloidosis is complex, but the principle of patient-centered care isn’t. Every patient deserves care that meets his or her individual needs.
Dr. Helen Lachmann, Consultant Nephrologist at UK National Amyloidosis Centre, explains how AL amyloidosis can affect different organs such as heart, kidneys, digestive system, nerves, etc and how this can be treated and managed. In most cases, Al Amyloidosis affects more than one organ in the body but it does not affect the brain.
My name is Dan Lier. After close to 24 months of searching for answers, I was recently diagnosed with cardiac amyloidosis. My doctors told me I had GERD (Gastro-Esophageal Reflux Disease), enlarged heart, athletes heart, congestive heart disease, enlarged liver, and even a potential virus. On April 12th, 2017, I was diagnosed with cardiac amyloidosis …
The importance of lab testing for monoclonal proteins to interpret the results of technetium pyrophosphate scans and the significance of wild-type transthyretin amyloidosis.
The Cardiac Amyloidosis Program at Brigham and Women’s Hospital’s (BWH) research patient, seen by Sharmila Dorbala, MD, FASNC, with AL amyloidosis and cardiac involvement discusses diagnosis and treatment. View ASNC’s cardiac amyloidosis resources.
In an interview with Rare Disease Report, Mathew Maurer, MD, Arnold and Arlene Professor of Cardiology at Columbia University, explained the standard of care and current management tactics for individuals with hereditary transthyretin amyloidosis-hATTR Amyloidosis.
Liana, from Brazil, lives with hereditary ATTR (hATTR) amyloidosis. She discusses her family history with the disease, the importance of getting testing, and how she helps others living with this rare disease.
In Scotland, John is living with Hereditary ATTR (hATTR) amyloidosis – an inherited, progressive disease caused by a genetic mutation that results in the misfolding of transthyretin (TTR) proteins. He and his wife Rosemary discuss their family, their journey to diagnosis and their hopes and fears for the future.