Amyloidosis Support Groups Inc. is a non-profit corporation which was formed for the primary purpose of starting and maintaining Amyloidosis Support Groups throughout the United States, dedicated to providing peer group support to patients, caregivers, families and friends of those touched by this life-threatening disease. Goals and Objectives To form Amyloidosis Support Groups where needed …
The Association was established by a group of patients with amyloidosis in 2016. Since then, it has been working to raise awareness about amyloidosis among patients and medical staffs, and to provide patients and their families with support, as well as access to the most innovative and effective treatments available today. The Amyloidosis Israel Org …
The Amyloidosis Foundation began with the vision of two patients, Don Brockman and Dennis Krysmalski. Don’s desire to support research and Dennis’s commitment to support patients and increase awareness have been the driving force behind the foundation for the past 15 years. Don’s widow, Mary O’Donnell, has led the foundation to become the success it …
Amyloidosis Australia is a website run by a family in Australia which was affected by Amyloidosis, a rare protein folding disorder. The website is meant to provide information, and support for anyone in Australia or New Zealand also affected by Amyloidosis. Amyloidosis Australia grew out of the Reid family’s experience of living with the disease …
The goal of Amyloidosis Alliance is to make significant contributions on the quality of cure and care for amyloidosis patients by exchange of experiences and constructive interaction with other patients at an international level. Objectives and Priorities of the Amyloidosis Alliance include: • Awareness – Diagnosis • Treatment and care • Research • Communication and …
The American Society of Nuclear Cardiology (ASNC) is the international leader in education, advocacy, and quality in cardiovascular imaging, with over 4,000 members worldwide. ASNC provides its members with a variety of continuing medical education programs related to nuclear cardiology and cardiovascular computed tomography (CT), promotes accreditation and certification in nuclear cardiology, establishes standards and …
With more than 17,000 members from nearly 100 countries, the American Society of Hematology (ASH) is the world’s largest professional society serving both clinicians and scientists around the world who are working to conquer blood diseases. Mission: The Society’s mission is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone …
ALect2 Alliance is a nonprofit group raising awareness and providing accurate information about LECT2 amyloidosis to support the patients who are diagnosed with it and physicians treating the disease. Join us in building a community working towards a cure for this disease! Use the link below to stay updated and let us know who you …
Action for Amyloidosis is an all-volunteer non-profit organization that benefits patients, families and the medical community, and others affected by this rare disease with energetic programs of support, education, and fundraising. Action for Amyloidosis will intensify the momentum already generated by existing groups battling the disease. In response to the enormous need for awareness, and …