Chip Miller was known worldwide for his resilient positive attitude, his passion for Corvettes, his tremendous personal Corvette collection and for creating the grandest Corvette event anywhere on the planet – Corvettes at Carlisle. In December 2003, Chip was diagnosed with a little-known disease called Amyloidosis. Due to complications from the disease he died on …
The Australian Amyloidosis Network is an amalgamation of four multi-disciplinary amyloidosis centres, dedicated to the diagnosis and management of Australian patients with all types of amyloidosis. Each centre has a multidisciplinary clinic with doctors from different specialities with an interest and focus in caring for those with amyloidosis. Some of the doctors have worked for …
The UK ATTR Amyloidosis Patients’ Association (UKATPA) was founded in 2017 by a group of UK patients with transthyretin (TTR)-type systemic amyloidosis (ATTR), supported by the consultant physicians of the UK NHS National Amyloidosis Centre. In this exciting environment of change and optimism, our members decided to found a UK patient group dedicated to the …
L’Associazione Italiana Amiloidosi Familiare fAMY Onlus non è a scopo di lucro ed è finalizzata a promuovere iniziative di ricerca e solidarietà sociale per soggetti affetti da amiloidosi familiare. Inoltre, intende: • tutelare i diritti dei malati affetti da Amiloidosi familiare • informare la pubblica opinione sull’esistenza e la natura dell’Amiloidosi • promuovere l’utilizzo di …
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Founded in 1974, the Association of Black Cardiologists, Inc., (ABC) is a non-profit organization with an international membership of over 1,800 health professionals, lay members of the community (Community Health Advocates), corporate members, and institutional members. The ABC is dedicated to eliminating the disparities related to cardiovascular disease in all people of color. The Association …
Anciennement Association Paulette Ghiron Bistagne contre l’amylose, aujourd’hui l’Association caritative française contre l’amylose est régie par la loi de 1901. Les buts déclarés de l’Association sont : • Favoriser la recherche médicale pour lutter contre l’Amylose, • Améliorer la connaissance de cette maladie auprès des publics concernés (médecins, malades, organismes divers). • Développer les synergies …
Somos una asociación comprometidos con la atención de afectados y familias con amiloidosis y nos esforzamos por dar una atención y soporte a todas aquellas personas diagnosticadas por esta enfermedad poco común, así como ayudar en la investigación de la Amiloidosis. Informamos y damos apoyo a enfermos y familiares de la enfermedad. La creación de …
A Associação Portuguesa de Paramiloidose é uma Instituição Particular de Solidariedade Social com sede na Rua Dr. António Bento Martins Júnior – Vila do Conde e estende a sua ação a todo o território nacional através dos seus Núcleos, nomeadamente Barcelos, Braga, Esposende, Figueira da Foz, Lisboa, Matosinhos/Porto, Ribatejo, Vila do Conde/Póvoa de Varzim e …
A Associação Brasileira de Paramiloidose – ABPAR foi fundada em 17 de novembro de 1989, no Salão de Convenções do Hotel Rio Copa, na cidade do Rio de Janeiro. Em dezembro desse mesmo ano, adquiriu personalidade jurídica após registro em cartório e publicação no Diário Oficial. Além de acompanhar as pesquisas médico-científicas na busca de …
ABEA es Asociación Balear de la Enfermedad de Andrade. Organización sin ánimo de lucro inscrita en el Registro de Asociaciones de la Comunidad Autónoma de las Islas Baleares con el número 3120. El Doctor Don Miguel Munar-Qués, junto a afectados de la enfermedad crearon la Asociación Balear de la Enfermedad de Andrade a fin de …