Global Genes

Global Genes is a non-profit whose mission is to connect, empower and inspire the rare disease community. We are a team of dedicated advocates who work to build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.

The group’s mission is to eliminate the challenges of rare disease, by providing patients with educational tools, building awareness, providing critical connections to people and resources, and through investment in technologies that will positively impact affected patients and families. Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 15,000 rare diseases that impact approximately 30 million Americans and over 350 million people
worldwide.