Health Equity and Rare Disorders

NORD is pleased to announce a collaboration with the Rare Disease Diversity Coalition (RDDC) on a three-part webinar series discussing the role that health care providers play in addressing health inequity in the rare disease community. The series will explore underlying issues that lead to inequities and encourage participants to evaluate their interactions with members of the rare disease community from marginalized groups.
The first part in the series discusses the disproportionate impact of rare disorders on communities of color, including barriers to access for early and accurate diagnosis, affordable health care, referrals to specialists, provision of educational and support services, and participation in clinical trials. This webinar is moderated by Dr. Georges Benjamin, Executive Director of the American Public Health Association, and feature a primary health care physician, a genetic counselor, and a rare disease patient advocate.